Narcolepsy: My Nightmare Never Ends

I am a housewife with the life debilitating sleeping disorder Narcolepsy. I have the full tetrad of symptoms: Excessive Daytime Sleepiness, Cataplexy, Sleep Paralysis, and Hypnogic Hallucianations. I can not drive and have been unable to work, thus far. I often get severely depressed and lonely due to the chonic confinement in our apartment. I dislike pettiness, discrimination, fake/arrogant superficial people and people who ignore those in need.

Kenneth is a model husband whom I adore. He is a wonderfull, loving person who is amazingly intelligent and adorable! With out him, I'd have no daily human contact or help functioning and taking care of myself day to day. Thank you Lord for the Miraculous blessing of Kenneth, you are my only other true friend in this world I can count on.

When it comes to politics, I am very passionately in favor of helping the ones most everyone else ignores and steps on: the poor, disabled, those discriminated against, etc. I tried to get Social Security SSI since June 2004, and I was determined officially disabled by an Administative Law Judge June 2006. I have received minimal back pay for the past 2 years of suffering in poverty. However, Social Security deemed us financialy inelligible since May 2006 when Kenneth became employed by the USPS, because he makes a little over the gross income maximum per month limit for 2 persons to get SSI.

I never had the chance to work and get enough credits to apply for SSDI! I received No Money, no Medicaid, nor Medicare, or even Food Stamps from the government while we struggled slightly less than the homeless! Did you know that you must be pregnant or already on SSI to receive Medicaid? Rediculous, isn't it?!!!! The terrifying reality is that by no means am I alone, so many others suffer needlessly. However, there are few resources to help those waiting for Social Security to finnally get off its bum and help us get our much needed presciptions and medical care. Huh, we couldn't afford the care I needed! Without Prescription Assistance Programs and clinics for the poor, I would rather die than constantly be trapped a prisioner in my Narcolepsy's REM associated symptoms of paralysis (sleep paralyisis, Cataplexy, and Hypnogogic/Hypnomyoptic Halluciantions). How are we to make ends meet, if no one really cares except God!!!! I didn't ask for this life debiliating disorder any more than I asked to be born!!! Shame....on the nation's people who claim to be rooted in Christain theology and values and turn their eyes the other way!!!!!! For Shame! Together, we can rise up, and make this country the jewel of humanity and philantropy which it should!